Welcome to CastlemansDisease.org
Hello, and welcome, to CastlemansDisease.org!
This site was created by my father, who had Multicentric Castleman’s Disease. He created it in an attempt to connect with others who are touched by this rare disease, and in hopes to help and encourage them any way he could.
The site envisions itself as a community of support and information for those affected by Castleman’s Disease. Rather you are a patient, a friend/family member of a patient, a doctor, or someone with an interest in the on-going research of the rare disorder, we are happy to have you in the community.
Please, make yourself a profile. After your profile has been created, you will be able to post in our forums and you will have your own activity wall. Please use both to keep us updated, and to encourage others as they continue to deal with Castleman’s Disease in their life.
We will be watching for news that is of interest to the CD community, and will post it in the News section as it become available.
We will post blogs on various topics concerning CD and the history of the disease, aslo. You can keep up-to-date with our blog posts in the Blog section.
If you see any recent news concerning Castleman’s Disease that we may have missed or if you just have any comments, suggestions, or questions, then please contact us through out Contact page.
If you are already a member, then please head over to our Forums and help us to make our new members feel welcome, supported, and encouraged.
Our only rule around here is to stay positive and offer each other the support and encouragement they need. Thank you all for coming here, and I hope everyone enjoys the community we are creating. 🙂